Committee Members of The Dorset Lupus Group

Jean Durrant Acting Chairperson Tel: 01258 860565 or	Hi, I'm Jean Durrant, a relatively new member of the Group. In April 1999, quite unexpectedly, I had a stroke. The hospital could find no obvious reason why this had happened. After three weeks of extensive tests and staff dedication, I was diagnosed with Lupus - Hughes Syndrome. Ignorant of the syndrome, I read everything in sight and soon learned how lucky I was to have such an early diagnosis. I now realise that being part of a support group aids your mental recovery as, unfortunately, there is no cure for the physical conditions that effect all Lupus sufferers. Now retired, I live in the small beautiful village of Okeford Fitzpaine where I am surrounded by supportive friends and a beautiful garden. Gardening, writing and going to the theatre (especially Shakespeare) are my passions as well as working for a number of local charities including 'DLG'. If you haven't joined us yet, why not take the plunge? It is good for us all to meet other people who understand what it is like to have Lupus and to help raise money so that Lupus research can move forward.

Janet Bourne Secretary Tel: 01202 874303 or	My name is Janet; I do not have Lupus myself but have other health related problems. I first became a member in 2006 as Margaret, one of the founding members of the group, was a life-long friend and like a sister to me. I volunteered because I wanted to help her and am now the Group’s Secretary. I am retired and live in Ferndown with Charles, my husband of 41 years. We have one son, James, who is a neuro-scientist and lives in Australia.

Debbie Steel Treasurer (& Past Chairperson)	Hello, I’m Debbie and I have been on the Committee, in a number of roles, since 2005. I was diagnosed with SLE in 1991, whilst backpacking in Australia. I was 30 years old and had already had Rheumatoid Arthritis since 1985. Lupus is more common there and I can only guess that the increased exposure to the sun triggered the flare. It is now under control but as you are all aware it can change on a day to day basis. I work part time for New Earth Solutions as a finance assistant. I am married to Dave, and we live in Ferndown. I especially enjoy gardening and travelling, both at home and abroad.

Tamsin Campbelton Newsletter Editor	Hi, I am the youngest member of the committee and was diagnosed with SLE in 1995 just after I finished my GCSEs. My lupus is very much under control these days although I still have the odd bad day and I have learnt over the years to know my limitations and say no when I can't do something. I live in Christchurch with my partner Chris, who is very supportive. I lead a very active life, and have recently set up two businesses in Architectural Design and Aloe Vera products. I am also a Duke of Edinburgh’s Award trainer and enjoy Wing Chun, horse riding and skiing. I joined the group when I moved to Dorset and have made some great friends. It would be nice to see some younger members at more of our events in the future.

Gerrish (Gerry) Gray Membership Sec., Librarian & Website	I don't have lupus myself but my partner of 25 years, Margaret, who passed away in 2009, did. She had been diagnosed in the early seventies after a stroke, but probably had suffered from lupus throughout her life. She had numerous side effects and complications but developed effective strategies for living a full, active and very happy life. She was one of the group's founders back in the 70's and a great believer in the support and friendship that the group could give to others. So I remain a member to help and support where I can and maybe preserve in some small way Margaret's endearing spirit and kindness. I am in my sixties, now more-or-less retired from business life, but keep busy in lots of ways including volunteer work for some other organisations too.

Carol Berkhauer Raffles and Events	My name is Carol and I have had SLE for about 30 years but was only diagnosed 15 years ago, I also suffer from Sjorgrens syndrome. I was in my mid twenties when I suffered several miscarriages and a stillbirth, which completely mystified the doctors. At present I lead a relatively 'normal' life and my health seems generally better apart from the occasional hiccup. I try to keep on top of the Lupus and eat as healthily as I can and exercise to the best of my ability. I enjoy walking in moderation and have recently invested in a bicycle. I live in Queens Park, Bournemouth and have been married to Ron for nearly forty years. We have a daughter and two gorgeous grandsons. I've met some very friendly people at the coffee mornings so why don't you come along!
Other Helpers: Yvonne ('Smiley') Bartlett and her husband Charlie, who help maintain contact with our members by sending cards to those with birthdays, or in hospital, or otherwise deserving of the kind, heart-warming, touch that opening a friendly greeting card can bring. all the enthusiastic fundraisers, past and present, like Past Chairperson Kathleen Sanders; Carole and Stewart Osborne from Portland (who organise the fabulous Lupus Fest pub music weekend annually in Octbober); the charity runners like Mary Hosking (Margaret's daughter) and her friend Leahn; Collette ('Frostie') Parker from Bridport, Richard Brooke of Dorchester, and many, many more ... ... and not forgetting all the countless others who support our events and fundraising or who have devoted their time to the Group in days gone by, many of whom do not have lupus themselves but have been happy to give selflessly of their time and efforts to help those who do. a big thank you to all of you! More kind helpers always needed! Please get in touch with our Acting Chairperson Jean Durrant as above if you would be willing to help in any way – it doesn't have to be very onerous or time-consuming.