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Library Service
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The Group maintains a library of books available on loan from our librarian - Gerrish Gray,
tel: 01202 849144 / mobile: 0777 552 4890, email:
Items can be inspected / collected / returned at many or our Local events and meetings, (or ask
our Librarian if you would like to make other arrangements). The current stock list includes
the following titles (Country of origin indicated where not UK):-
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Life, Love, and Lupus, Stevie Beth, 2011 (USA) - The story, written by an American
social worker, of a teenage girl growing up with lupus and the challenges she faced in her
emotional life.
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Tales of a Flying Doctor and the Story Behind Hughes Syndrome, Prof Graham Hughes,
2011 (copy signed by author).
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Coping and Living with Lupus, Lancashire and Cheshire Lupus Group, 2010 - A series of
members personal stories.
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The Lupus Book (4th Ed.), Dr Daniel J Wallace, 2009 (USA) - A comprehensive guide for
patients and their families.
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Understanding Hughes Syndrome, Prof Graham Hughes, 2009 - Case studies for patients.
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Julie's Story - My Life With Lupus, 2008 (USA) - The challenges and struggles of one
young woman's life in dealing with lupus
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The Brain and Other Animals, Prof Graham Hughes, 2008 - Lessons from patients with
Hughes Syndrome (the anti phospholipid syndrome)
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The Lupus Recovery Diet - A Natural Approach to Autoimmune Disease, Jill Hattington,
2007 (USA - Gives details of a specific diet and lifetyle advice successfully followed by the
author and others to overcome lupus (but not intended as a replacement for medical advice).
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Positive Options for Sjogren's Syndrome, Sue Dyson, 2005 - Diagnosis, self-help and
treatment
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Positive Options for Living with Lupus, Philippa Pigache, 2005 - Diagnosis, self-help
and treatment.
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Lupus, A Guide for Nurses, Lupus UK, 2004 - An introduction to lupus for nurses and
associated health professionals.
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Lupus Q&A (2nd Ed.), Dr Robert Lahita and Dr Robert Phillips, 2004 (USA) - An
informative and compassionate perspective on coping with lupus, from a rheumatologist and a
psychologist.
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Talking About Lupus, Triona Holden and Prof Graham Hughes, 2003 - Combines patients'
own experiences with simple, easily understood, discussion of medical issues from symptoms
and diagnosis to treatment and prognosis.
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Living with Lupus from Eleven, Adam Cran, 2003(?) - The personal story of a child's
battle to come to terms with the disease at a young age.
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Coping with Lupus (3rd Ed.), Dr Robert Philipps, 2001 (USA) - A practical guide
written by a psychologist with advice on strategies for dealing with the psychological
aspects of living with chronic health problems. (Updated 4th Edition due April 2012).
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The Challenges of Lupus, Henrietta Aladjem, 2000 (USA) - A compilation by a lupus
patient of 40 separate articles about lupus written by doctors and experts. (2 copies)
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Butterfly Traveller, ELEF, 1999 - A medical phrase book (in 12 languages) for the
lupus patient and other travellers. (2 copies)
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Lupus, Diagnosis & Treatment, Lupus UK, 1998 - A reference book for GPs and health
professionals, with expert articles by UK lupus specialists. (2 copies).
Some older books (which may not be up-to-date and therefore possibly inaccurate regarding
current medical practice) :-
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Hughes Syndrome, Prof Graham Hughes, 1997 - A patient's guide to the antiphopholipid
syndrome.
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Lupus - A guide for patients, Prof Graham Hughes.
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Living with Lupus (1st Ed.), Dr Sheldon Blau and Dodi Schultz, 1993 (USA) - An updated
edition was published in 2004 but is not in our present library stock.
On order & expected soon:-
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The Facts - Lupus (2nd Ed.), David Isenburg and Susan Manzi
A more in-depth look at lupus and its treatments. Intended for patients but also worthwhile
reading for non-expert medical and associated health professionals
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Hughes Syndrome - A Patients Guide, Prof Graham Hughes
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A Patient's Guide to Lupus, Prof Graham Hughes
We also have a supply of free Lupus UL leaflets (also available for download from the Lupus UK website :-
- Guide to Lupus
- Learn about Lupus
- Lupus – A Guide for Nurses
- Lupus – Incidence Within the Community
- Lupus – Systemic Lupus Erythmatosus
- Lupus – The Heart & Lungs
- Lupus – The Mouth, Nose & Eyes
- Lupus – The Skin & Hair
- Lupus and Blood Disorders
- Lupus and Light Sensitivity
- Lupus and Medication
- Lupus and Men
- Lupus and Mixed Connective Tissue Disease<
- Lupus and Pregnancy
- Lupus and the Brain
- Lupus and the Kidneys
- Someone you know may have Lupus
- The Many Faces of Lupus
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"Don't give up, fight with all your strength. Be sure that if you really want you can change your own
fate."
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